FRAXA's mission is to accelerate progress toward effective treatments and
ultimately a cure for Fragile X, by directly funding the most promising research.
FRAXA also supports families affected by Fragile X and raises awareness of this
important but virtually unknown disease.
FRAXA was founded in 1994 by three parents of children with Fragile X,
Katie Clapp, Michael Tranfaglia MD, and Kathy May, to support scientific
research aimed at finding a treatment and a cure for Fragile X. Fragile
X research is drastically underfunded, considering its high prevalence,
prospects for a cure, and the promise that this research holds for advancing
understanding of other disorders like autism, Alzheimer's disease, and X-linked
mental retardation.
FRAXA funds grants and fellowships at universities all over the world. We have
funded more than $17 million dollars in top-notch science. FRAXA's management expenses
have always been just 4% or less of income, as we have just one full-time staff, three part time staff, and
hundreds of volunteer parents. Since FRAXA was founded, the Fragile X field has
grown tremendously, due in large part to our grass-roots efforts. You can help
us accomplish much more. FRAXA financial information and tax forms are available at
Guidestar.org and here:
Proof of IRS 501c3 tax-exempt status
Audited financial statements for
2009
2008
2007
2006
(pdf files)
2009
2008
2007
2006
2005
2004
2003
2002
2001
2000
1999
1998
