Two complementary studies were just published in Science Translational Medicine, and they’ve been getting a ton of attention in the media. Since lots of people are asking about these articles, and reporters have been calling to get my comments (and occasionally misquoting me), I thought I’d give my official commentary here. The first article (Henderson ...
What a great story! www.bbcworldservice.com/outlook has the podcast. FRAXA is hosting Mission to Lars in Boston on July 12. This is a special 1-time benefit screening to benefit research on Fragile X. Jim Cantore will be flying up from Atlanta for it. Tickets and more information available at fraxa.org
There was a time when no one ever heard about Fragile X. The days seemed darker and colder back then. When a woman named Doris Buffett decided to embrace us, her warmth spread over us like a blanket, and the impact of her presence was immediate. As mothers and fathers of Fragile X children, we ...
by Leslie Eddy On September 11th of this year, we drove our 14-year-old daughter to a boarding school for children with learning differences. It was the second worst day in memory. The first was when I learned she had Fragile X Syndrome. She was three months old then. Sometimes, I can hardly remember life before ...