Callum Cup VIII, Millburn FC’s annual charity match, scored big with $19,400 raised for Fragile X research, bringing total funds to $148,000. Discover how soccer unites for a cause.
Read moreEvents Recap
19th Annual Fragile X Poker Run Raises $33,000 for Fragile X Research!
Friends, family, and supporters came together again at the Alleghany Inn in Sparta, NC, for the 19th Annual Fragile X Poker Run, continuing a powerful tradition started by organizers Jimmy and Dana Charlton.
Read moreWorld Fragile X Day 2024: A Global Celebration of Awareness and Research Progress
Recap of World Fragile X Day 2024, a global event by FRAXA that highlighted research advances and raised awareness for Fragile X syndrome. Explore beautiful photos of landmark illuminations around the world.
Read moreHole-in-One for Fragile X Research: Highlights from the 37th Annual Charity Golf Tournament
Celebrate the success of the Hall family’s golf tournament raising $35,000 for Fragile X research, contributing over $327,000 to date for FRAXA Research Foundation.
Read morePatrick’s PALS 28th Annual Basketball Tournament for FRAXA Breaks Record
Recap of Patrick’s PALS 28: a successful 3-on-3 basketball fundraiser in Boston, raising $170,000+ for FRAXA Research Foundation.
Read moreCelebrating Teamwork: FRAXA’s 7th Year at Bruins 50/50 Event
Celebrating FRAXA’s 7th year at Bruins 50/50 Event: teamwork and community unite for Fragile X research.
Read moreCallum Cup’s Big Win: Millburn Charity Soccer Raises $26K for Fragile X Research
Discover the inspiring story of the Callum Cup in Millburn, NJ – a charity soccer match that raised over $26,000 for Fragile X research. Join us in celebrating community spirit and a commitment to a vital cause.
Read moreYour Support on Giving Tuesday 2023 is Transforming Research
On Giving Tuesday 2023, the generosity of 191 donors raised $333,517 for FRAXA Research Foundation, advancing research and hope for a cure for Fragile X syndrome.
Read moreCelebrating Success at Patrick’s PALS 27th Annual 3-on-3 Basketball Tournament for FRAXA
Recap of Patrick’s PALS 27: a successful 3-on-3 basketball fundraiser at Bentley University, raising $150,000+ for FRAXA Research Foundation.
Read moreA Look Back at 2022 and Ahead to 2023 Research Prospects
This holiday season you proved that the adage “actions speak louder than words” is entirely accurate. We sincerely appreciate your gifts in action. FRAXA supporters came out in full force to meet the generous $100,000 challenge offered on Giving Tuesday.
Read more$269,774 Raised for Fragile X Research on #GivingTuesday
Thank you very much for being a part of yet another fantastic and historic #GivingTuesday! FRAXA raised a total of $269,774 with our matching contributions!! This is incredible. Our work would be impossible without you.
Read more$19,600 Raised For Fragile X Research at Callum Cup VI
The Callum Cup is back & as popular as ever! This annual intra-club charity match is the marquee event of the Millburn FC soccer calendar. After 7 years, the Callum Cup matches have raised $94,600 for Fragile X research.
Read moreFamilies Come from Multiple States for Flatbread Pizza Fundraiser
The world seems less scary. We were invited to the pizza party where we met Katie and so many other families. We were welcomed like family! It was such a good feeling to not be alone and have people understand your daily struggles and want change, like you, for Fragile X families.
Read morePatrick’s PALS 3-on-3 Basketball Tournament Returns with a Big Impact
The triumphant return of Patrick’s PALS 3-on-3 Basketball Tournament after a hiatus of three years. With the help of Shady Hill School, the event raised close to $150,000 for FRAXA Research Foundation.
Read moreWorld Fragile X Day Is Lighting the Way for Fragile X Research
The world shone brightly on July 22 for World Fragile X Day. An impressive 383 locations around the globe lit up to promote awareness and highlight the progress of Fragile X research.
Read moreCharity Golf Tournament on Memorial Day Weekend Helps Fund Fragile X Research
Brothers Pete and Dave Hall hosted their 33rd Annual Charity Golf Tournament on Memorial Day weekend. For the fifteenth consecutive year the money raised from this long-standing event has gone to FRAXA. This year’s total of over $28,000 pushes the 15 year total to over $262,000!
Read moreBuilt Jobsite BBQ Raising Funds for Fragile X Research
Jason, a Built employee, worked with his team to host a BBQ at one of their construction sites to benefit FRAXA Research Foundation. Built, one of Australia’s largest private construction groups, has a reputation for being client focused. Their personal touch extends not only to their clients but to their employees, too, as Jason and Belinda D’Amico experienced personally after their boys, Jaxson and Alex, were diagnosed with Fragile X syndrome.
Read moreVLM Commodities Charity Week Raises $10,000 for Fragile X Research
“We are often asked how we can do this, live with the challenges of Fragile X, day in and day out” Lou shared, “It’s just what we do. We keep going forward. FRAXA gives life and purpose to our community. I look forward to Charity Week being an annual VLM event and supporting the work FRAXA does.”
Read moreWine and Friends Are a Great Blend for Fragile X Research
This evening was the first of what will be an annual event for Debra and Kevin, whose grandson Jackson has Fragile X syndrome. Their son, Edward, was on hand sharing with guests how Fragile X has impacted the life of his son and the challenges he and his wife, Avalon, face each day.
Read moreClimbing 3 Mountains for Fragile X Research
People often say they would do anything for their children. What if that “anything” was to climb a mountain? How about three in a twenty-four hour time period? That’s exactly what Michael Leonard did in honor of his son, Cole, who lives with Fragile X syndrome.
Read morePatrick’s PALS Still Shined Strong Even in the Face of COVID
Patrick’s PALS 25th Annual 3-on-3 Basketball Tournament & Fundraiser was once again relegated to “Fundraiser Only” status in 2021. BUT, and it’s a BIG but, the spirit, generosity and devotion of so many to this event still shined through. Over $140,000 was raised through a mail campaign, all of it of course going to FRAXA to continue to advance research that will someday lead to effective treatments and ultimately a cure.
Read more16th Annual Fragile X Poker Run Raises nearly $29,000
The 16th Annual Fragile X Poker Run took place July 31 – August 2, 2021 in North Carolina. The generosity of the participants raised nearly $29,000 for FRAXA and Fragile X Research!
Great family and friends from 10 different states attended the event, one friend even came from Israel!
Read moreBruins 50/50 Benefits Fragile X Research
As the Bruins took to the ice to score a big win over the Detroit Red Wings, FRAXA volunteers took to the concourse selling 50/50 tickets to fans. This incredible opportunity, made possible by the Boston Bruins Foundation, raised a grand total of $28,040 which was split between FRAXA and one lucky winner!
Read moreOver $20,000 Raised For Fragile X Research at Callum Cup V
After a one year hiatus, due the COVID-19 pandemic, the Callum Cup made a triumphant return last month. This annual intra-club charity match is the marquee event of the Millburn FC soccer calendar. The game being played in honor of Callum Murphy, the son of Andrew Murphy, one of the club’s goalkeepers.
Read moreFundraising Never Tasted So Good
I scream, you scream, we all scream for ice cream! That’s what over 100 people said on Sunday, September 26 when the Lancaster Sweet Shoppe in Lancaster, Pennsylvania donated all of its proceeds from the day to FRAXA Research Foundation, in honor of my son, JT. All said and done, we are investing $15,205.30 in FRAXA’s work.
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