Since 2010, the US Department of Defense (DOD) has funded many millions of dollars of Fragile X research through their Peer Reviewed Medical Research Program (PRMRP). Established and directed by Congress, the PRMRP supports groundbreaking, high-risk, high-gain research while encouraging out-of-the-box thinking.
Once again this program is seeking volunteers to help evaluate research applications submitted to the PRMRP. Volunteers do not need to have a scientific background. Consumer reviewers are asked to represent the collective view of patients and help scientists understand how particular research projects would impact the Fragile X community. Volunteers are full voting members (along with prominent scientists) at meetings (either in person or virtual) to help determine how millions appropriated by Congress will be spent on PRMRP research.
FRAXA has been asked to nominate candidates again this year. You will need to fill out a nomination form and include a resume by March 7.
If you are interested in this role, please contact Holly Roos at hroos@fraxa.org.