We are thrilled to announce the launch of FRAXA Research Foundation’s 2024 Annual Appeal with an inspiring start: a generous $100,000 donation from the Berg and Schatz families, made in honor of 5-year-old Cooper, who has Fragile X syndrome.
This incredible gift from Bob and Sherri Berg, along with Jessica, Scott, Cooper, and Peri Schatz, will fully fund two new research teams in the spring of 2025! Their donation is a powerful testament to the love and hope that drives families affected by Fragile X syndrome to support groundbreaking research.
A Note from the Berg and Schatz Families
We are writing to inform you of our decision to make a donation to support research on Fragile X Syndrome. Approximately two and a half years ago, our family was deeply affected when we learned that our grandchild/child had been diagnosed with Fragile X. It has been an incredibly challenging and emotional journey for us, but along the way, we have encountered many wonderful families who are also a part of the Fragile X journey.
The strength, resilience and love we’ve witnessed in these families have inspired us to take action. We are hopeful that our contribution will not only support ongoing research but also help find new treatments and, one day, a cure for Fragile X syndrome. We believe this research can offer a brighter future for our grandchild/child, and for other affected individuals for generations to come.
Thank you for your dedication to this cause. We are honored to support this important work and look forward to the progress that will be made in the coming years.
Bob and Sherri Berg
Jessica, Scott, Cooper and Peri Schatz
Gratitude and Hope Unite to Drive Research Forward
Everyone can play a vital role in improving the lives of those living with Fragile X. Every donation — no matter the amount — moves research forward. With your support, we will find effective treatments and ultimately a cure.
We are truly thankful to the Berg and Schatz families. Their contribution means that we can support two entire research projects for the coming year -- and one of those two new projects might be the one that holds the key to solving Fragile X.
Please join the Berg and Schatz families in making a meaningful impact by donating today.
Together, we can do so much!
Written by
Katie Clapp
President and Co-Founder
Katie Clapp is Co-Founder and President of FRAXA Research Foundation. In 1994, after her son Andy was diagnosed with Fragile X, Katie, her husband Michael Tranfaglia, and a third parent, Kathy May, founded FRAXA Research Foundation. She has a BA in History from Harvard University and an MS in Computer Science from the University of North Carolina at Chapel Hill.
Katie has won a number of awards for her work with FRAXA, including a Community Hero award from the American Red Cross and a Women of Justice award from Massachusetts Lawyers Weekly.