This year marks an exciting milestone: the 5th annual World Fragile X Day. What began as a united effort by FRAXA Research Foundation and founding collaborators in Canada (pink) and Australia (orange) has grown into a powerful global movement.
Every July 22, iconic landmarks and buildings light up in teal, or local colors of support, to honor families affected by Fragile X and raise awareness for this often-overlooked condition.
Since the beginning, nearly 600 landmarks across 18 countries have participated, thanks to an incredible network of families, volunteers, and partner organizations around the world.
Get Involved in the 5th World Fragile X Day
Help make this year the most impactful yet by joining the global movement.
Fundraise Your Way
Start a GiveLively Peer-to-Peer fundraiser or create a Facebook fundraiser in honor of World Fragile X Day. Whether you raise five dollars or five hundred, your effort fuels real progress. Every donation supports cutting-edge research, drives the development of new treatments, and brings us closer to effective therapies for families living with Fragile X.
Host an Event
Plan a fundraiser, organize a family get-together, or gather a group to take photos of landmarks lit up near you. Whether it is a backyard barbecue, a walk in the park, or a community gathering, any event helps spread hope, raise awareness, and connect families affected by Fragile X.
Work with Local Media
Share your family’s story or local awareness efforts with the press. Whether it is a newspaper, radio interview, or online feature, your voice helps bring Fragile X into the spotlight. If you are unsure where to start, we can provide support with media outreach, templates, and tools to help you tell your story in a powerful and personal way.
Request a Proclamation
Ask your city, county, or state officials to officially declare July 22 as World Fragile X Day. Proclamations help raise public awareness and show families they are supported by their community. We provide easy-to-use templates, guidance, and one-on-one support to help you make your request. Whether this is your first time or you are renewing a past proclamation, we are here to help every step of the way.
Help with Outreach
Volunteer to help us secure more landmark illuminations across the globe in honor of World Fragile X Day. All it takes is a quick email or phone call to a local landmark or building manager. We will provide everything you need, including sample language and support. Whether you help light up one building or many, your effort helps make Fragile X more visible in communities around the world.
World Fragile X Day is about awareness. It’s about being seen. And it’s about hope.
Let’s make this 5th year the brightest one yet — together.
👉 Learn more or sign up at fraxa.org/world-fragile-x-day/
📩 Questions or want to get started? Contact Holly Roos at hroos@fraxa.org
2025 Sponsors
Written by
Holly Roos
Community Services Director
Holly Roos is the Community Services Director at FRAXA Research Foundation, where she has been serving since 2021. She has over 20 years of experience in fundraising, advocacy, education, and awareness within the Fragile X community. Holly lives with her children, Parker and A, in Central Illinois.