On July 22, 2024, World Fragile X Day exploded onto the global stage with dazzling light displays. World Fragile X Day, an initiative of FRAXA Research Foundation, raises awareness and highlights the progress of research on Fragile X syndrome. This annual event, celebrated on July 22 by FRAXA and its partners, brings together communities worldwide to support families affected by Fragile X and to showcase groundbreaking research fueling hope for a cure.
This year 13 countries joined the celebrations, illuminating over 400 landmarks around the world. Iconic structures, including Niagara Falls in Canada and the USA, Matagarup Bridge in Perth, Australia, Atal Setu Bridge in India, La Equis (The X) in Mexico, and the Blue Cross Blue Shield Building in Chicago, were awash in vivid colors. These spectacular illuminations symbolize our commitment to supporting those affected by Fragile X syndrome.
Top Highlights and Memorable Moments
Webinars: This year FRAXA Research Foundation, the Fragile X Association of Australia and the Faculty of Biology at the University of Warsaw in Poland held educational webinars on Fragile X, covering topics such as the latest research developments and treatment options.
Social Media Impact: Social Media Impact: Our social media reach was the largest yet! Not only did families share images of illuminated landmarks and articles, but the landmarks and locations themselves also shared information about Fragile X syndrome. This collective effort resulted in our best social media outreach to date.
Community Stories: Inspiring stories from communities around the globe highlighted the strength and resilience of individuals with Fragile X syndrome and their families. As one parent shared, “World Fragile X Day brings hope to our family, especially with our two boys affected by Fragile X. Seeing landmarks illuminated in support strengthens us and reminds us we're not alone. This day holds a special place in our hearts.”
Join Us to Make World Fragile X Day 2025 Even Brighter
As we look forward to the 5th World Fragile X Day on July 22, 2025, we invite everyone to join this incredible movement. Whether by securing landmark illumination, connecting with local and state officials for World Fragile X Day proclamations, organizing events or fundraising activities, or helping with media and graphics, you can help! Together, we can make a significant impact and bring even more awareness to Fragile X syndrome.
Thank you to everyone who participated and made World Fragile X Day 2024 a resounding success. Let’s make 2025 even bigger and better!
Written by
Holly Roos
Community Services Director
Holly Roos is the Community Services Director at FRAXA Research Foundation, where she has been serving since 2021. She has over 20 years of experience in fundraising, advocacy, education, and awareness within the Fragile X community. Holly lives with her children, Parker and A, in Central Illinois.